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Jennifer Mankoff authoredJennifer Mankoff authored
designing.html 8.78 KiB
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title: Evaluation --Week 4--
description: Designing for ad With People with Disabilities
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# Week 4: Designing for and With People with Disabilities
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# Important Reminder
## This is an important reminder
## Make sure zoom is running and recording!!!
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[//]: # (Outline Slide)
# Learning Goals for Today
- Picking a direction that the disability community cares about
- How to get a first person perspective without burdening the disability community
- Running an inclusive need finding study to prove that something is (or is not) a disability dongle :)
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# Disability Dongle
.quote[Disability Dongle: A well intended elegant, yet useless solution to a problem we never knew we had. Disability Dongles are most often conceived of and created in design schools and at IDEO.] [Liz Jackson](https://twitter.com/elizejackson/status/1110629818234818570)
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# Disability Dongle
- Often speculative
- Sometimes "they enact normative or curative harm upon disabled users"
- Emphasize quick fix over structural change
???
explain the jargon
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# Who is Behind Disability Dongles?
- Award bait
- “Thank you for your feedback” and what it signals
- Whose idea and whose credit
???
Thank you for your feedback is a signal that we have no control over how our knowledge will be used; by reframing disabled expertise and critique as “feedback,” this phrase, like IKEA’s ThisAbles campaign, relegates disabled people to the role of user and subordinates disabled knowledge to the (professional) designerly imagination. It’s a disingenuous phrase, in which “thank you” is uttered to remind us that it is actually us who should be grateful.
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# What is the alternative?
Ethical needfinding: Complicated, especially in industry settings
In my own work, I try to do the following. Can any of this translate?
1. Advocate for the inclusion of people with disabilities in higher education ad research
2. Seek out and admit students to my group who have first person experience with disability (and are also excellent researchers)
3. Work to be an ally to them and any other disabled students I encounter so that they can succeed
4. Engage with the disability community in selecting problems and disseminating my results
5. Include disabled community members who contribute strongly to my projects as authors on my papers
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# Discussion
Break into small groups and [post your group's thoughts on Ed](https://edstem.org/us/courses/31170/discussion/2373160) about:
Award Bait/disability dongles you found for the reading question
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# Focusing in on Needfinding
Participatory Design/Research: Emanates from design & technology field, has been specifically used in Assistive Technology & HCI research; and applied in education and healthcare settings; children & older adults
- Working directly with users (& other stakeholders) in the design of systems
- Users are actively involved in setting design goals and planning prototypes
- Contrasts with methods where user input is sought only after initial concepts and prototypes have been produced (i.e. PD is more than user-testing)
- Early and continual participation of intended users to produce better technologies that better suit the needs of users
.footnote[Dr Jane Seale-- School of Education, University of Southampton]
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# Participatory Research in Accessibility
Aims to engage participants in the design, conduct and evaluation of products/research with the construction of non-hierarchical relations
Participants encouraged to own the outcome by setting the goals and sharing in decisions about processes
“Nothing about me, without me”
.footnote[Dr Jane Seale-- School of Education, University of Southampton]
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# Participatory Design: Issues
Is the “right” user identified? Which stakeholders are included (e.g. student & teacher?)
- Value sensitive design is an excellent multi-stakeholder alternative
Changing role of user (as process progresses): Informant through to designer
Nature of expertise of users: Domain expert or design expert or both?
Conceptions of the role of “user”: Informant, designer, coach, participant, partner, knowledge-worker; expert
True partnership?: Is user a co-author? A co-inventor on a patent?
.footnote[Dr Jane Seale-- School of Education, University of Southampton]
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# Participatory Research in Accessibility
Ensuring research topic is one that people with disabilities consider worthy of investigation
Asking people with disabilities to act as consultants or advisors to projects
Provision of support, training and payment so that people with disabilities can undertake their own research
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# Participatory Research in Accessibility
Narrative research: Life history, biography, oral history
Focus groups, interviews
Action Research
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# Making participatory methods accessible
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Consider:
- Communication
- Materials
- Time
- Space
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What might differ here from summative research?
- bigger ask (more time) potetnially, especially in PD vs interview
Special case: Children -- Assent versus Consent
Special case: Nonspeaking individuals
- Can be a tendency for support workers to speak on behalf of the person with a
disability
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# Concerns to Address
Disabled people can occupy any part in the design/research pipeline
Whether disabled or not, it is important o
- Ensure integrity of “accounts” gained through narrative life history methods
- Find ways to support participants with disabilities to become researchers/designers in their own capacity
- Play down skills of the designer/researcher in PR (Walmsley 2004)
- Address power dynamics
Accountability and ownership
- Designer/Researcher is accountable to the funder- who owns the research agenda?
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# Concerns to Address
Participation versus Emancipation
- Emancipatory research
- Researcher is accountable to participants with disabilities. Their skills are at the disposal of the people with disabilities
- Under the control of disabled people and pursued in their interests (Mike Oliver)
- Brings about a change, emancipation
- Participatory research
- A useful compromise, a step towards ER (Chappell, 2000)
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# Training the Team
Non-disabled researchers need training if they are to work in PR and take on a support role
Potential problematic motivations
- Over-whelming desire to do something that could benefit others
- Responsibility to deliver on this expectation
Access needs can synergize and conflict; try to plan for these when designing your studies
Power dynamics come into play when negotiating access needs
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[//]: # (Outline Slide)
# Learning Goals for Today
- Picking a direction that the disability community cares about
- How to get a first person perspective without burdening the disability community
- Running an inclusive need finding study to prove that something is (or is not) a disability dongle :)
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# Next Assignment: [AT Around Us](../assignments/finding-accessibility.html) (1 of 2)
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- Practice presenting accessibly
- Exposure to a range of accessiblity technologies
- Experience finding first person accounts
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# Next Assignment: [AT Around Us](../assignments/finding-accessibility.html) (2 of 2)
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- Practice presenting accessibly
- Exposure to a range of accessiblity technologies
- Experience finding first person accounts
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Find one computer access technology
Find one about "the world"
Key points
- Try not to pick the same things as your classmates
- Should include a first person video
- Should be able to try it out yourself
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# Handin requirements
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Handin:
- Two accessible slides per AT (see Canvas for slide deck)
- Present one of them next week (accessibly) in 3-4 minutes (will take about half of class)
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Slide includes:
- A summary of the AT you researched
- Information about its audience
- A picture of the AT
- A link to the first person account you found
- Something you learned from the video and/or by trying it about its strengths and weaknesses
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# Research Opportunity
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I (Kelly) made a Google Slides Add-On that automatically checks for some accessibility issues
You may join the study (use the tool, provide some feedback) and you will be compensated
**You do not have to participate in this study. Your grade will not be affected if you do or do not participate in this study.**
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